In Egypt when  a new baby is born with EB  some of  the doctors in hospitals will find it difficult to define the disease and if they defined it , they send the baby to a Dermatologist . Most of them will investigate and give medicines after taking a biopsy and make general checkups , but they will not advise the mother of the EB baby how to deal with him/her.  This was a big problem the family will face dealing with the baby a nd this will cause a lot of discomfort to the mother and child.
They refer the EB baby to us to teach the mother how to deal and care.
Our next goal is  to teach nurses how to deal with EB children in hospitals and we succeeded in some hospitals like KIDS hospital in Mohandessen and Ain Shas Hospital in Heliopolis.

Now, we are happy that there are doctors who know how to deal with EB 

• Dr. Adel Amr Professor of Plastic Surgery at Ain Shams University
• Dr. Soheir El Shafei, Senior Consultation Dentist at Lebanon Clinic