OBJECTIVES
- Spread awareness and integrate Epidermolysis Bullosa (EB) children in the society. They are called butterfly children.
- Support EB patients and their families with knowledge and medical supplies.
- To alleviate their pain and draw a smile on their faces.
- Deal with their mind with respect and encourage them to be self depended and creative.
- A world where anyone with EB has the support and access to medical insurance and to be under the 5% handicapped to have the right to live with bride and diginity.